The Crohnsicle http://crohns.bennernet.com News, Views and Info about Crohn's Disease Sat, 26 Jun 2010 13:58:02 +0000 http://wordpress.org/?v=2.8 en hourly 1 Know Your Body’s Quick-Cooling Spots http://crohns.bennernet.com/2010/06/26/know-your-bodys-quick-cooling-spots/ http://crohns.bennernet.com/2010/06/26/know-your-bodys-quick-cooling-spots/#comments Sat, 26 Jun 2010 13:58:02 +0000 benner http://crohns.bennernet.com/?p=77 So – I am a big fan of Lifehacker – http://lifehacker.com and came across this post. I know a few cooling tricks and also have a chillow, but thought this was quite useful information to keep as well as pass on.

Enjoy the read!

http://lifehacker.com/5571072/know-your-bodys-cooling-spots

]]> http://crohns.bennernet.com/2010/06/26/know-your-bodys-quick-cooling-spots/feed/ 0 Man uses remote to control his ‘bionic bottom’ http://crohns.bennernet.com/2009/11/14/man-uses-remote-to-control-his-bionic-bottom/ http://crohns.bennernet.com/2009/11/14/man-uses-remote-to-control-his-bionic-bottom/#comments Sun, 15 Nov 2009 01:00:13 +0000 benner http://crohns.bennernet.com/?p=74 I don’t know what to say about this… kinda cool.. kinda weird…  progress I guess.

http://www.telegraph.co.uk/news/newstopics/howaboutthat/6560971/Man-uses-remote-to-control-his-bionic-bottom.html

]]> http://crohns.bennernet.com/2009/11/14/man-uses-remote-to-control-his-bionic-bottom/feed/ 0 Tips for sleeping with Crohn’s Night Sweats http://crohns.bennernet.com/2009/07/15/tips-for-sleeping-with-crohns-night-sweats/ http://crohns.bennernet.com/2009/07/15/tips-for-sleeping-with-crohns-night-sweats/#comments Thu, 16 Jul 2009 03:35:13 +0000 benner http://crohns.bennernet.com/?p=72 A while back I bought a “Chillow” to insert into my pillow and I have to say that I like it a lot. It does what it is supposed to do, but it is difficult to keep it in place. (I tend to mash my pillow up when trying to get comfortable)

While the Chillow works fairly well, I stumbled across this wikihow entry about sleeping comfortably on a hot night – and it certainly applies to folks that suffer from Crohn’s night sweats and feverish sleep like I do.

http://www.wikihow.com/Sleep-Comfortably-on-a-Hot-Night

Good luck sleeping!

-Benner

]]> http://crohns.bennernet.com/2009/07/15/tips-for-sleeping-with-crohns-night-sweats/feed/ 1 No downloading while you are downloading http://crohns.bennernet.com/2009/07/11/no-downloading-while-you-are-downloading/ http://crohns.bennernet.com/2009/07/11/no-downloading-while-you-are-downloading/#comments Sat, 11 Jul 2009 14:31:44 +0000 benner http://crohns.bennernet.com/?p=69 *chuckle* found this picture on gizmodo.com

504x_toiletlaptop

]]> http://crohns.bennernet.com/2009/07/11/no-downloading-while-you-are-downloading/feed/ 0 Some days… http://crohns.bennernet.com/2009/07/09/some-days/ http://crohns.bennernet.com/2009/07/09/some-days/#comments Thu, 09 Jul 2009 22:21:44 +0000 benner http://crohns.bennernet.com/2009/07/09/some-days/ With Crohn’s some days you feel like this…

And other days are better and you feel like this…

]]> http://crohns.bennernet.com/2009/07/09/some-days/feed/ 0 Take Steps 2009 Notes http://crohns.bennernet.com/2009/05/31/take-steps-2009-notes/ http://crohns.bennernet.com/2009/05/31/take-steps-2009-notes/#comments Sun, 31 May 2009 16:46:43 +0000 benner http://crohns.bennernet.com/?p=54 Well, the Take Steps 2009 Walk was last night and a good time was had by all. We actually took pictures for a change this year. You can see them in the post below – you can also view them on picassa at http://picasaweb.google.com/bennernet/TakeSteps2009

I personally want to thank all of you who joined in through donations, participating, and attempting to participate, but being unable to… your kind thoughts and deeds are warmly regarded and appreciated.

Thanks!
Ben

p.s. Kier – the t-shirt logo was a great hit – thanks for your help designing it!!!

]]> http://crohns.bennernet.com/2009/05/31/take-steps-2009-notes/feed/ 0 Take Steps 2009 http://crohns.bennernet.com/2009/05/31/take-steps-2009/ http://crohns.bennernet.com/2009/05/31/take-steps-2009/#comments Sun, 31 May 2009 16:35:53 +0000 benner http://crohns.bennernet.com/?p=48
TakeSteps2009
23 photos
 
 
]]> http://crohns.bennernet.com/2009/05/31/take-steps-2009/feed/ 0 Google Web Elements Feed http://crohns.bennernet.com/2009/05/27/google-web-elements-feed/ http://crohns.bennernet.com/2009/05/27/google-web-elements-feed/#comments Thu, 28 May 2009 00:56:52 +0000 benner http://crohns.bennernet.com/?p=42 This is a new google tool that has become available – Google Web Elements. Took 5 seconds to create a customized Crohn’s feed and then I cut and pasted the code here… easy peasy.



]]> http://crohns.bennernet.com/2009/05/27/google-web-elements-feed/feed/ 0 9 News Reporter and husband live with I.B.D. http://crohns.bennernet.com/2009/05/25/9-news-reporter-and-husband-live-with-ibd/ http://crohns.bennernet.com/2009/05/25/9-news-reporter-and-husband-live-with-ibd/#comments Tue, 26 May 2009 02:46:00 +0000 benner http://crohns.bennernet.com/2009/05/25/9-news-reporter-and-husband-live-with-ibd/ I was surprised to see this article on (Denver) 9 News pop up on the radar this past week. It is sad to see two great people suffering from IBD, but good to see the publicity to increase awareness of the diseases.

http://www.9news.com/seenon9news/article.aspx?storyid=115936&catid=509

-Ben

]]> http://crohns.bennernet.com/2009/05/25/9-news-reporter-and-husband-live-with-ibd/feed/ 0 “The Movement” has returned http://crohns.bennernet.com/2009/03/07/the-movement-has-returned/ http://crohns.bennernet.com/2009/03/07/the-movement-has-returned/#comments Sat, 07 Mar 2009 19:57:24 +0000 benner http://crohns.bennernet.com/2009/03/07/the-movement-has-returned/ Hi everyone,

It is getting to be that time of year again… Yep, “The Movement” has returned and  it is time to Take Steps for Crohn’s and Colitis again!

The Movement 2009

They changed a few things with the event last year and had the event at the Denver Zoo. It turned out to be a great move and the kids had a wonderful time.  It will be held on Saturday evening (May 30th) at the Denver Zoo! The registration and Festival is at 6:30 p.m. and the Walk and View Animals event starts at 7:30 p.m. They have definitely made this a more family friendly event! I am looking forward to it.

If you are interested in either participating or donating the event information is as follows:

Take Steps for Crohn’s & Colitis Walk was created to raise funds to find a cure for Crohn’s disease and ulcerative colitis and to increase awareness about these diseases. Participants raise funds to support research and education programs.

Event Date: Saturday May 30th, 2009
Event Location: Denver Zoo
Event Schedule: 6:30 p.m. Registration and Festival /     7:30 p.m. Walk Starts
Standard: No Fees (General Registration)
Team Name: The Movement

To register you can go to:
http://online.ccfa.org/site/TR/Walk/2009TakeSteps/867461249?px=1392401&pg=personal&fr_id=1219 and click on the “Join Ben’s Team” button.

To donate you can go to:
http://online.ccfa.org/site/TR/Walk/2009TakeSteps/867461249?px=1392401&pg=personal&fr_id=1219 and click on the “Support Ben Now!” button.

Any participation  or assistance would be appreciated. I realize now may not be a good time for some of you. So, if that is the case, please consider it another time… maybe next year?

Thanks to all of you in advance. It has been an interesting journey so far and there has been plenty of good news for Crohn’s treatment this year… Hopefully we can continue to have a positive impact on research and maybe even cure this damn disease.

Thanks again and take care,
Ben

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