Comments for The Crohnsicle

Comment on Euphemisms for Pooping by patrick

patrick — Mon, 25 Jul 2011 12:35:09 +0000

Here is one for diahrrea. Its more of a descriptor. It was like a broken soft serve machine, that’s been left out in the sun..hooked up to a CO2 line.

Comment on List of Celebrities And Famous People with Crohn’s Disease by simon

simon — Tue, 15 Mar 2011 20:52:54 +0000

apparently JFK had chrons too

Comment on Fecal Transplants?!? by pw

pw — Tue, 08 Feb 2011 22:52:40 +0000

It is not like we have lots of drug choices for Crohns. Looks like fecal transplant is safe, and if it brings remission why not try it?
There is a doctor in Australia who uses it to treat colitis (Thomas Borody) – I didn’t know it can be done at home – thanks for posting this.

Comment on List of Celebrities And Famous People with Crohn’s Disease by britney

britney — Sun, 21 Nov 2010 21:09:08 +0000

great this helps me with my health project

Comment on Euphemisms for Pooping by Craig

Craig — Sun, 21 Nov 2010 07:11:27 +0000

Charlie wants out of the chocolate factory

Comment on About by Terr Kirby Erickson

Terr Kirby Erickson — Sat, 13 Mar 2010 16:31:13 +0000

Sorry–that is http://www.painpathways.com!

Comment on About by Terr Kirby Erickson

Terr Kirby Erickson — Sat, 13 Mar 2010 16:29:37 +0000

Hi Ben!

Great blog… I just want to tell you about an article I wrote for a wonderful magazine called PainPathways. The article is called, “Only Part of My Story: Crohn’s Disease.” It was a tough story to write, but I tried to make it uplifting–to show that you can still live your dreams, even with a chronic illness. The article is in the March/Spring issue of the magazine, which supposedly comes out on March 16, 2010. You can find it at Barnes & Nobles and at B. Dalton’s all over the country, and also in doctors’ offices. The PP website is: http://www.painpathway.org. I wish you all the best, Terri Kirby Erickson, NC

Comment on Tips for sleeping with Crohn’s Night Sweats by Ben

Ben — Tue, 10 Nov 2009 19:17:15 +0000

Some good tips. But I find having a really hot shower just before I go to bed helps. I guess its a bit like an all over body sweat; dissipating heat quite well. Then Sleeping in just my underwear, trying not to move too much. Basically I find lying in a star shape helps (much to the annoyance of my wife). Obviously having the window open with a fan circulating the air.

When I was in hospital suffering a flare up in mid summer, I had a fan directed at me at all times. I couldnt sleep in my underwear as I didnt feel comfortable with all the patients and nurses looking at my semi naked body while I slept! The waterproof matress and pillow dont help either. Often making me more hot than I would be at home as they dont allow the air to circulate

Ben – meandmycrohns.co.uk

Comment on Euphemisms for Pooping by benner

benner — Fri, 16 Oct 2009 01:58:10 +0000

Hi Darlene,

I don’t really know of any other folks that are taking remicade aside from the folks I talk to who are receiving infusions at the same time as I am. Yes, I am on remicade as well. I have been for about 6 years now and so far so good. So, yes, there are others like you… Plenty of others.

Good luck with your infusion!
-Benner

Comment on Euphemisms for Pooping by Darlene

Darlene — Wed, 14 Oct 2009 19:22:47 +0000

Hi. I am new to the blog world so if I am doing this wrong, just let me know! I was very recently diagnosed with Crohn’s and have been doing some internet seaches. I found your blog and have enjoyed reading your articles and all. I have a question; have you or any of your “crohnies” been taking remicade? I have been told that I will need to have infusions for the rest of my life and I want to know if there are others like me….
Thank you!