Comments for The Crohnsicle http://crohns.bennernet.com News, Views and Info about Crohn's Disease Wed, 10 Mar 2010 13:16:32 +0000 http://wordpress.org/?v=2.7.1 hourly 1 Comment on Tips for sleeping with Crohn’s Night Sweats by Ben http://crohns.bennernet.com/2009/07/15/tips-for-sleeping-with-crohns-night-sweats/comment-page-1/#comment-104 Ben Tue, 10 Nov 2009 19:17:15 +0000 http://crohns.bennernet.com/?p=72#comment-104 Some good tips. But I find having a really hot shower just before I go to bed helps. I guess its a bit like an all over body sweat; dissipating heat quite well. Then Sleeping in just my underwear, trying not to move too much. Basically I find lying in a star shape helps (much to the annoyance of my wife). Obviously having the window open with a fan circulating the air. When I was in hospital suffering a flare up in mid summer, I had a fan directed at me at all times. I couldnt sleep in my underwear as I didnt feel comfortable with all the patients and nurses looking at my semi naked body while I slept! The waterproof matress and pillow dont help either. Often making me more hot than I would be at home as they dont allow the air to circulate Ben - meandmycrohns.co.uk Some good tips. But I find having a really hot shower just before I go to bed helps. I guess its a bit like an all over body sweat; dissipating heat quite well. Then Sleeping in just my underwear, trying not to move too much. Basically I find lying in a star shape helps (much to the annoyance of my wife). Obviously having the window open with a fan circulating the air.

When I was in hospital suffering a flare up in mid summer, I had a fan directed at me at all times. I couldnt sleep in my underwear as I didnt feel comfortable with all the patients and nurses looking at my semi naked body while I slept! The waterproof matress and pillow dont help either. Often making me more hot than I would be at home as they dont allow the air to circulate

Ben - meandmycrohns.co.uk

]]> Comment on Euphemisms for Pooping by benner http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/comment-page-1/#comment-103 benner Fri, 16 Oct 2009 01:58:10 +0000 http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/#comment-103 Hi Darlene, I don't really know of any other folks that are taking remicade aside from the folks I talk to who are receiving infusions at the same time as I am. Yes, I am on remicade as well. I have been for about 6 years now and so far so good. So, yes, there are others like you... Plenty of others. Good luck with your infusion! -Benner Hi Darlene,

I don’t really know of any other folks that are taking remicade aside from the folks I talk to who are receiving infusions at the same time as I am. Yes, I am on remicade as well. I have been for about 6 years now and so far so good. So, yes, there are others like you… Plenty of others.

Good luck with your infusion!
-Benner

]]> Comment on Euphemisms for Pooping by Darlene http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/comment-page-1/#comment-102 Darlene Wed, 14 Oct 2009 19:22:47 +0000 http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/#comment-102 Hi. I am new to the blog world so if I am doing this wrong, just let me know! I was very recently diagnosed with Crohn's and have been doing some internet seaches. I found your blog and have enjoyed reading your articles and all. I have a question; have you or any of your "crohnies" been taking remicade? I have been told that I will need to have infusions for the rest of my life and I want to know if there are others like me.... Thank you! Hi. I am new to the blog world so if I am doing this wrong, just let me know! I was very recently diagnosed with Crohn’s and have been doing some internet seaches. I found your blog and have enjoyed reading your articles and all. I have a question; have you or any of your “crohnies” been taking remicade? I have been told that I will need to have infusions for the rest of my life and I want to know if there are others like me….
Thank you!

]]> Comment on Euphemisms for Pooping by Bailey http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/comment-page-1/#comment-101 Bailey Wed, 07 Oct 2009 05:34:31 +0000 http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/#comment-101 "I'm going to murder a brown snake." “I’m going to murder a brown snake.”

]]> Comment on Euphemisms for Pooping by Crissy http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/comment-page-1/#comment-99 Crissy Tue, 22 Sep 2009 02:44:32 +0000 http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/#comment-99 Two more for diarrhea: The Bends Pee Butt Two more for diarrhea:
The Bends
Pee Butt

]]> Comment on About by Ben http://crohns.bennernet.com/about/comment-page-1/#comment-98 Ben Wed, 16 Sep 2009 18:13:49 +0000 #comment-98 Hello Ben I found your blog very interesting and funny. Lots of really good stuff on here I have just set up my own blog, mostly talking about Infliximab. Im looking to bring other people with Crohns to my site and comment and get involved with any discussions. Leaving their feedback, stories etc. I wonder if I could link your site and mine. Hopefully sending traffic each others way. I know this sounds cheeky. Check out meandmycrohns.co.uk Thanks Ben Hello Ben

I found your blog very interesting and funny. Lots of really good stuff on here

I have just set up my own blog, mostly talking about Infliximab.

Im looking to bring other people with Crohns to my site and comment and get involved with any discussions. Leaving their feedback, stories etc. I wonder if I could link your site and mine. Hopefully sending traffic each others way.

I know this sounds cheeky.

Check out meandmycrohns.co.uk

Thanks

Ben

]]> Comment on Diying with dignity by corinne http://crohns.bennernet.com/2008/09/15/diying-with-dignity/comment-page-1/#comment-97 corinne Fri, 04 Sep 2009 02:18:06 +0000 http://crohns.bennernet.com/2008/09/15/diying-with-dignity/#comment-97 I would rather my kids see me die in peace than watch me vomit my fecal matter in agonizing pain. Dogs are treated better than humans... where do you think the term "Inhuman" came from? Kavorkian was right... I would rather my kids see me die in peace than watch me vomit my fecal matter in agonizing pain. Dogs are treated better than humans… where do you think the term “Inhuman” came from?

Kavorkian was right…

]]> Comment on Euphemisms for Pooping by Aaron O'Brien http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/comment-page-1/#comment-92 Aaron O'Brien Thu, 01 Jan 2009 21:11:28 +0000 http://crohns.bennernet.com/2008/01/26/euphemisms-for-pooping/#comment-92 Making brown-25. Another fine product of Uranus Corporation. Bombing the Tidy-bowl man. Checking on yesterday's dinner Shaping the meatloaf Squeezing the salami Making room for dinner. Digging in the cat box. Operation "Clean Sweep" Hanging fresh ornaments. Checking the evacuation route. Exercising the push-me pull-you Arranging furniture, moving the stools. Hanging ten, or at least eight Launching the DSRV Seeing off the bus full of colonels (kernels) Man. That corn was good! Making brown-25. Another fine product of Uranus Corporation.
Bombing the Tidy-bowl man.
Checking on yesterday’s dinner
Shaping the meatloaf
Squeezing the salami
Making room for dinner.
Digging in the cat box.
Operation “Clean Sweep”
Hanging fresh ornaments.
Checking the evacuation route.
Exercising the push-me pull-you
Arranging furniture, moving the stools.
Hanging ten, or at least eight
Launching the DSRV
Seeing off the bus full of colonels (kernels)
Man. That corn was good!

]]> Comment on Diying with dignity by J.C. http://crohns.bennernet.com/2008/09/15/diying-with-dignity/comment-page-1/#comment-91 J.C. Thu, 09 Oct 2008 22:09:10 +0000 http://crohns.bennernet.com/2008/09/15/diying-with-dignity/#comment-91 My god. She sounds like an amazing person. My god. She sounds like an amazing person.

]]> Comment on Diying with dignity by benner http://crohns.bennernet.com/2008/09/15/diying-with-dignity/comment-page-1/#comment-90 benner Mon, 29 Sep 2008 03:05:54 +0000 http://crohns.bennernet.com/2008/09/15/diying-with-dignity/#comment-90 I set this article aside because I feel for Angelique and I am sorry she has gone through such trouble. I am saddened by the loss of such a unique person. BUT, I am not so sure I agree with her approach. I am not entirely opposed to euthanasia and understand these cases are comprised of individuals in dire straits who don't have any hope for a cure. There is a side of me, however, that feels like it is somewhat of a cop-out and a selfish act because it only considers the immediate patient and not the friends and family around them that are impacted as well. Yes, I understand it may be huge burden to the families and those instances are understood, however there are those cases where the family may disagree with the decision or may not be prepared to "give up" their loved one. I have a beautiful wife and two wonderful kids and have a hard time thinking I could choose euthanasia when it came down to it. I don't know, maybe it is just me... I set this article aside because I feel for Angelique and I am sorry she has gone through such trouble. I am saddened by the loss of such a unique person. BUT, I am not so sure I agree with her approach.

I am not entirely opposed to euthanasia and understand these cases are comprised of individuals in dire straits who don’t have any hope for a cure. There is a side of me, however, that feels like it is somewhat of a cop-out and a selfish act because it only considers the immediate patient and not the friends and family around them that are impacted as well. Yes, I understand it may be huge burden to the families and those instances are understood, however there are those cases where the family may disagree with the decision or may not be prepared to “give up” their loved one.

I have a beautiful wife and two wonderful kids and have a hard time thinking I could choose euthanasia when it came down to it.

I don’t know, maybe it is just me…

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